Tuesday, April 6, 2010

MS and Tree Pollen...

Some of you know, others not so much. I have Multiple Sclerosis. Recently it has been effecting me more and more and so as is my usual recourse, I do some research to see what I can do. Sadly, I hit many many dead ends and am stuck in a rut. I have reason to believe that My personal case of MS is from a severe interaction with tree pollen, and even taking Allergy Medicines has had little to no help. I doubt that anyone who reads this will have much scientific savvy when it comes to MS, but I throw this knowledge out there just to show what I have found.
     Every year around the time that the Tree Pollen counts rise, my Muscle Spasms, Headaches, and issues I care not to speak about increase. Its like Clockwork, and I have written a log in the past several years, documenting this Reaction and Exacerbations of My ms symptoms. As a matter of fact, my Optic Neuritis was diagnosed during a severe tree pollen warning in the year 2000. What can this knowledge do for me, if I have absolutely no recourse other than seeing doctors and Physicians assistants that really don't care about my case, nor do they have a vested interest in my health, other than getting what little money I actually do have. I'm stumped as to what I can do, and I really am not sure anyone can help at all. My last choice as of now is to go on a new drug called Tysabri. This medication has apparently had great results with 999 out of 1000 people that have used it. And then there is the kicker. Tysabri has a 1 in 1000 chance of causing a debilitating brain infection which makes my MS look like I'm hearing some gummy bears to pass the time. My luck with odds has proven to be shoddy at best in the past, and I am not sure what If I want to actually try this medication out. Be that as It may, How am I supposed to go through with all of my long term plans, Helping People, saving the world if I end up on a Vent as a Vegetable in the process of trying to help myself? And thus, I am back to square one. I know, I know, Keep fighting, Keep pushing as hard as you can. Enough Venting for now, and as I've said numerous times "Don't cry for me argentina" A silly little line from evita that I tell people when they are saddened by my inevitable demise.

Saturday, April 3, 2010

Should I be more selfish?

I have a condition. And although I have been told that I am as close to Marv In Sin City, not that kind of condition. Well maybe a little bit like that kind, but I digress. The condition which I am speaking of is one where I always want to help. I Help, and I Help, and just to make sure I've Helped enough, I Help some more. And yet most of the time, I feel like I am getting the short end of the stick. Perpetually I am surrounded by a world full of people that through their own selfish outlooks on life they refuse to acknowledge the real and true picture that surrounds them. Yet, they always seem to be completely and totally happy with their lives.  Going from one selfish accomplishment to the next without a worry or care for their fellow men or women. Being that I am the person that I am, I am compelled to try to do something about this, and I am not exactly sure how to tackle this debacle. I am taking suggestions though. By all means, leave me a comment about this. I will also leave you a Comment Question. What color do you think I look the best in? Yellow, Blue, or Grey?

Thursday, April 1, 2010

April Fools day, The difference between being a person and a Human, Medical Bills Galore...

So today is April First, and their is a long history of today being a day of Mirth and practical jokes. I would however like to change the scope of this day to something new. I recommend that we change today to a day full of explosions, Viking Raids, and great beards and mustaches. Its just a thought, and It might help keep some of the less kind practical jokes from happening if there is fear of being attacked by Vikings, or potentially exploding if you do so. Its just a thought.
As usual, I've been thinking about alot of things, which is really all I seem to do anymore. Isn't it funny how you can call someone a "Fantastic Person" or on the flip side a "Fantastic Human Being". Technically they both mean the same thing, but the nuances of our language makes them two completely different things. If someone says you are a fantastic person, you know that they are being completely nice and personalizing the comment, acknowledging that you are in fact a person to them and not just a nameless face in a crowd. Being called a fantastic human being alternatively means that you are not so personalized in the eyes of the person that said it. Yet they both really mean the same thing. My mind works in strange ways I know, but Go out and give it a whirl when talking to people, you will be surprised at the complete change in responses you will get.
Today I received a phone call from Hershey Medical Center asking me to pay a past due balance from when My daughter was admitted for Auto Immune Hemolitic Anemia. Now we had recently received a bill from the ambulance company that took her down there from Wilkes Barre, for the low low cost of 2300 dollars that wasn't covered under insurance. Todays total after the bill was received from Hershey? 4500$ total we owe them for saving my daughters life. I am thankful that they did just that, however what use is insurance if I am still paying this much out of pocket? I am on disability, My wife works very hard as an LPN on Night Shift no less. I am doing my best to get the proper training to get off of disability and to get a job in the meager job market that is out there. And now I am torn, Is it better to stay on disability, and HOPEFULLY no one gets sick, or should I continue with my long term plans, and do my best in the long run to potentially save the world? Oh decisions decisions....